Sorbelli family got a Thanksgiving holiday miracle when after Nicky’s chemotherapy we got to leave the Hospital & come back home to Key West because his blood counts were holding up so well & fighting so strong


“Miracle Blues From Outer Space” TODAY’S soundtrack for Nicky Sorbelli’s EPIC ASS KICKING of his blood cancer! The Sorbelli family got a holiday miracle yesterday when after Nicky’s chemotherapy we got to leave the Miami Children’s Hospital & come back home because his blood counts were holding up so well & fighting so strong!!! He isn’t scheduled for any more chemo until Dec 14th so a little break is just amazing for him and us right now!
It’s a feeling I can’t explain – I’m so happy! There aren’t any words for the feelings that accompany getting out of the hospital and chemotherapy UNEXPECTEDLY the day before Thanksgivibg! It’s a true holiday miracle and we are very very thankful – it’s perfect! 
As we drive down US1 heading back home – I am getting calls and texts and emails from my music shop in Key West that there was a very special person hanging out and celebrating the holiday on Duval street  Key West – a one and only ROBERT PLANT. Yep that is special and he is probably cool to party with and hang with – but all I can say – and I say with much humility and respect – “MOVE OVER ROBERT PLANT NICKY SORBELLI is coming back to town!!” Robert you & Santa Clause may have to wait in line for the attention this year if Nicky is back in town because he’s the coolest of the cool! 

And Robert his hair was as EPIC as yours back in the day. He’s Lion at heart – a Golden Child God

   

 www.Sorbelli.com

The heart port was placed in Nicky’s chest via an operation just under the skin but atop the breast muscle. The lines were fished though his main arteries and directly into his heart for chemo infusion- then a lumbar puncture & spinal tap chemo. My hero Nicky Sorbelli

  
          Nicky Sorbelli, my 10yr old son, the bravest boy I’ve ever met – just had his finger picked to get blood work that showed he qualifies for his chemo today (that means his body can handle the chemo without it killing him) Now he just got his MediPort (heart port) activated (the heart port is a small rubber sphere similar to a super ball with a few IV lines that come off it. The port was placed in Nicky’s chest via a minor operation just under the skin but atop the breast muscle and the lines were fished though the main arteries and directly into his heart.  This is to protect his veins from the ongoing chemo treatment preventing burning and damage during infusions. The port goes directly to the Heart and pumped to entire body quicker and safer. To “activate” the port we put numbing cream on the bumble on his chest. Then the qualified nurse sticks a one inch 20 gauge needle into it then hooks any and all meds directly to the access needle not having to stick Nicky for any thing else during this stay at the hospital. Which is awesome because constant needles and children do NOT go well together.  

After the first chemo infusion Nicky will head down to minor procedures for a lunar puncture (spinal tap chemo)

Thanks for all the prayers and for the continued support with the fundraisers and benefit concerts – we are blessed by and because of you all. 

Follow Nicky’s own blog page: https://sorbelli.com/nicky/

List of Nicky Sorbeli Cancer KILLER benefit concerts: http://islandguitar.com/nicky-sorbelli-fundraiser/

Family website: www.Sorbelli.com

To donate to Nicky’s Cancer Killer Fund: https://www.gofundme.com/uldcw0

 
Once the heart port is activated and the IV lines hooked up, they hang the bags of chemo and medicines and let the infussions begin. 

It’s sit back and wait now.  In between the vicious spells of nasea  we like to play video games, paint with our artist friend Diana De Los Rios, or even play a little ukulele or guitar together. 

I should add that Nicky still does his school work every day and online skype lessons with his teacher almost daily – yes even while in the hospital Nicky WANTS to keep learning. His grades are great and he is moving through the ciriculum at a fast steady determined pace. He is truly my hero on so many levels. I am humbled by my 10 yr old son. Thank you God & Jamie for giving me such a wonderful soul – a wonderful person – my hero Nicky Sorbelli. 

Sorbelli Family Zombie Cancer Killer Super Heroes going to teach Nicky’s blood cancer a lesson on how to GET OUT & STAY AWAY

 

Sobelli Cancer Killer Zombie Heros
 
  We were training on being cancer killing Heros and keeping positive so that we may unleash on the beast cancer a serious butt kicking. 

We have to be tough REAL tough –  ZOMBIE TUFF !!! So we practicing getting ZOMBIE on today’s catch so we are prepared to take on Nicky’s blood cancer. 

We are getting ready to go in for phase 3 of 4 intense chemotherapy on Tuesday morning. We were at home in Key West for a few days of “rest/fishing 😃👍” – getting ready to head back to Miami in a few hours. It would have been great to see our friends this weekend but so sorry we couldn’t make it to Jazz Cafe Benefit for Nicky (we were under doctor’s orders to avoid anyone but immediate family & avoid all crowds (because Nicky’s immune system is very compromised at the moment as the chemotherapy does its job on the cancer) which makes fishing on a boat in the gulf of Mexico away from everything and everyone a relatively SAFE but very fun activity (except for  the swimming with the SHARKS part lol just kidding)
I’m asking in advance to please keep sending prayers!! Thank you 
Updates at www.Sorbelli.com

List of Nicky benefit concerts http://islandguitar.com/nicky-sorbelli-fundraiser/

Getting ready to start phase 3 of 4 intense chemotherapy on Tuesday morning. We r at home in Key West for few days of “rest” & light fishing w/Commander Hawk Fishing Charters. 

  
We are getting ready to go in for phase 3 of 4 intense chemotherapy on Tuesday morning. We were at home in Key West for a few days of “rest” “fishing 😃👍” – getting ready to head back to Miami in a few hours. It would have been great to see our friends this weekend but so sorry we couldn’t make it to Jazz Cafe Benefit for Nicky (we were under doctor’s orders to avoid anyone but immediate family & avoid all crowds (because Nicky’s immune system is very compromised at the moment as the chemotherapy does its job on the cancer) which makes fishing on a boat in the the gulf if Mexico away from everything and everyone is a SAFE and still very fun activity (except for swimming with the SHARKS lol)

I’m asking in advance to please keep sending prayers!! Thank you 

Nicky Sorbelli “Kicking Cancers Butt – One Block at a Time” T-Shirts

Nicky Sorbelli Cancer Killer Fundraiser T-Shirt SALE @Island Guitar Key West & Wayne's World Music Dallas NEPA
Nicky Sorbelli Cancer Killer Fundraiser T-Shirt SALE @Island Guitar Key West & Wayne’s World Music Dallas NEPA

Call us by phone or leave us an email for shirt orders:

Island Guitar Key West (Home of the BONE ISLAND MUSIC CREW) 1109 Key Plaza Key West, Fl 33040 Phone: 305-414-8056

For a list of benefit concerts: http://islandguitar.com/nicky-sorbelli-fundraiser/

Nicky’s Blog: https://sorbelli.com/nicky/

Island Guitar Dallas (Home of the  Wayne’s World Music Crew) 2611 Memorial Hwy Dallas, Pennsylvania 18612 570-674-1995    

CONTACT & ORDERS http://islandguitar.com/contact-location/