Some Sorbelli Family time, Jamie, Nicky and I at Fairchild Botanical Gardens, Miami Florida. When having a good day with good blood counts,good white blood cell counts, days with energy to spare (while kicking cancer’s ass), we explore around beautiful Coconut Grove & South Miami area.
All posts by waynesorbelli
“Mind Over Matter” training for a few days broke cancer’s “stop eating” spell & his hunger came back with a vengeance – his energy came back & his friend from Key West visited us at our Miami apartment.
Some “mind over matter” training over the past few days had helped Nicky break cancer’s “stop eating” spell – it was not an easy battle, but Nicky wooped its ass & his hunger came back with a vengeance.
Shortly after eating his energy came back & then, and with perfect timing, a friend of Nicky’s from Key West visited us at our Miami apartment for the evening and is coming back again to play tomorrow!
We want to thank every single person who sent prayers and positive thoughts and messages and encouraging emails etc. thank you. The good intentions and prayers payed off and worked and helped us make it through “a pretty rough” past few days.
Many many thanks to Nicky for being such a warrior. He’s my little lion cub “Nicky the Lionheart”
Super extra special thanks to my wife and Nicky’s mother & MOM Jamie Maniskas Sorbelli – she is the floor from which my world begins to be built -period.
OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/
To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0
One cancer ass kicking day at a time,,, but yesterday it was almost kicking our ass, it was a little, but I think we bounced off of a “bottom” Sorbelli.com
One cancer ass kicking day at a time,,, but yesterday it was almost kicking our ass, it was a little, but I think we bounced off of a “bottom” and pray that today is better. I have a feeling it will be better today.
Nicky is sleeping right now so I’m just praying and reading over the posts by friends and all the positive vibes and prayers out there on my web sites and email and texts. It’s so awesome and uplifting. It really helps us to have all the digital age support – there would be a big void if we didn’t keep up digitally and with our web site and messages and emails!!!!
When it comes right down to it – we’ve been keeping track – when we reach out for prayers and help – its stronger than chemo — its stronger than food or vitamins — some powerful stuff, the power of positive thought. The cancer & or chemo is tricking Nicky into not eating much at all, really if he doesn’t eat today we’ll be going into the hospital for sure 🙁
There is so much psychology going on here at the moment at Casa Sorbelli. We can’t make too big of a fuss over eating or it creates too much pressure, and defense/offense position open up. We’re not playing that game. Instead we are trying to take the TEAM approach today. We will use every “mind over matter” advantage ala small portions on plate; cool or room temp NOT hot as it tends to make nausea worse; disguising non attractive food for colorful happy looking food; shakes shakes shakes and more shakes. U can blend up just about anything and make it taste like just about anything – I’m hoping.
It’s a non stop struggle almost a battle to get him to eat even 1 cheerio. This is the first time he has shut out food. – so it rocked our boat & his, yesterday unfortunately he is very weakened by now not only the chemo but also the lack of any food. It had taken from 9am-7pm yesterday to drink half of a protein shake (which is not enough).
Today when he wakes up we are going to keep calm and try to teach him more about Mind Over Matter. I’m taking it as a Good sign that right before he passed out on the couch yesterday after a short walk, he raised his fist in the air and proclaimed “take that cancer, your not getting me” and he punched his closed clinched fist in the air. I was so proud of him. I knew as he was passing out that today was going to be a better day, or least a better day of the mind and of taking big control back – TAKING CONTROL where you can, like trying to eat and exercise is essential for healing.
Like my dear family friend, Key West chiropractor Michael Norman who’s offer of an X-ray saved Nicky’s life, says :
“Step 1 one :Maximize the Mind!!!!!”
Forward thinking, forward moving, bless up/\
For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :
Wayne Sorbelli (Nicky Fund 2487)
2520 Harris Ave.Apt 1
Key West. FL 33040
OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/
To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0
WAYNE & NICKY SORBELLI HANGING IN MIAMI WHILE WHOOPIN’ CANCERS ASS ONE DAY AT A TIME! GRATEFUL TO ALL OUR KEY WEST & NEPA FAMILY & FRIENDS FOLLOWING SORBELLI.COM & ISLANDGUITAR.COM HELPING US STAY IN TOUCH & IN TUNE.
The entire extended Sorbelli family are VERY grateful to all our Key West & NEPA Pennsylvania family & friends who are following our lives, on Sorbelli.com & IslandGuitar.com helping us stay in touch & in tune. Our family music shop has stayed open with tons of help from our friends. Thank you David Warren, James King III, Shana Gaskill, Rusty Applebee, Beth Brown , Marilyn & Dean Borland & Briana Castillo. Sheila Keezer, Ted Shudak, Quint & Cathy Sorbelli. The Sechevich family. Penny Maun, Layla Laser, one million others.
HELP Nicky Sorbelli my 9yr old son whom we just discovered has T Lymphoblastic Lymphoma (cancer) & we badly need everyone to HELP & PRAY & SHARE.
So far he is responding well to treatment. Treatment plan for now is Thurs – Saturday in Miami children’s hospital every week until Jan 2016, then once a month for 2 years. So it’s going to be a long strange trip to say the least.
For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :
Wayne Sorbelli (Nicky Fund 2487)
Harris Ave.Apt 1
Key West. FL 33040
Nicky & I are typing and loading pictures on Nicky’s own page on our Sorbelli family website at https://sorbelli.com/nicky/
OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: http://islandguitar.com/nicky-sorbelli-fundraiser/
To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0
Leela and Wayne Sorbelli photo comparison at 3-4 yrs old.
Wayne in 1975 (right) and daughter Leela 2005 (left).
Looking at our hair (bangs), I can’t believe that Leela’s hair even parts just like mine did.
If I were smiling a little more, the pictures would look even more alike!
Leela’s page on our family blog https://sorbelli.com/leela/
Wayne’s page on family blog https://sorbelli.com/wayne/
Our family music store since 1997 Waynes World Music in Dallas and Island Guitar Key West http://www.islandguitar.com
WIN REPLICA OF STEVIE RAY VAUGHN’S 1962 FENDER STRAT – REBUILT W/LOVE & SKILL BY BUTCH FRABLE (FAT CAT CUSTOM GUITARS) UP FOR AUCTION For NICKY SORBELLI CANCER BENEFIT Raffle tickets sold until 7/31/15 GOD LUCK
This replica of Stevie Ray Vaughn’s 1962 Fender Strat was rebuilt with much love and skill by Butch Frable for Fat Cat Custom Guitars.
Butch has generously donated this guitar for auction at the benefit for Nicky Sorbelli, along with this gig bag, generously donated by Jack Gretz of Northeast Music Center.
Thank you tall the bands that played at my July 12th 2015 beefier concert!!! You guys all ROCK!! Special thanks to my grandfather “Poppy” Sorbelli for sitting in and playing drums with StingRay blues band on Kansas City & WipeOut (one of my favorites) Love you Poppy!!!!
HELP Nicky Sorbelli my 9yr old son whom we just discovered has T Lymphoblastic Lymphoma (cancer) & we badly need everyone to HELP & PRAY & SHARE.
So far he is responding well to treatment. Treatment plan for now is Thurs – Saturday in Miami children’s hospital every week for next seven months. Then once a month for three years. So it’s going to be a long strange
For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :
Wayne Sorbelli (Nicky Fund 2487)
2520 Harris Ave.Apt 1
Key West. FL 33040
OFFICIAL UP TO DATE everything Nicky Sorbelli. https://sorbelli.com/category/nickyhttps://sorbelli.com/category/nicky-sorbelli/-sorbelli/
OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/
To donate to Their Go Fund Me site: http://www.gofundmehttp://de.gofund.me/uldcw0.com/uldcw0/
Nicky Sorbelli holds on dearly to his “healing scarf” that people prayed with then sent to him as a gift
Nicky holds on dearly to his heeling scarf that people prayed with then sent to him THANK YOU.
While wearing it he thinks of all the people’s faces he remembers from church and around town in kW & NEPA and he says he can actually feel its positive energy. It actually helps heal him. No doubt about it.
A few Sundays ago I’m sitting in Miami Children’s Hospital standing next to Nicky while he lay in bed after chemo and my hair is standing up on my arms and back of neck & everytime I walked by Nicky. It was like static electricity but not the same. Hard to describe. But then I checked my phone later and realized over a hundred messages and emails and texts were being sent to our family at that exact time. When I realized that it was the fact that churches were calling to say they were all praying that morning for Nicky, with his picture on the big screens in churches everywhere not just key west and NEPA, and then got more message from different people and churches all saying the same thing. They were all thinking and praying for us at the sane time. I swear I almost fainted when I realized it was everyone’s prayers that I was physically feeling when I stood next to Nicky. Omg let me say how wonderful a feeling to watch his color come back, and wake up and say- dad – I think I feel better now!
His treatments, prayers, caring, sharing of resources, LOVE and positivity are working!
NIcholas is “Kicking Cancer’s Butt, One Block at a Time”
For all updates & Nicky News https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/
TO MAKE DONATION:
Their Go Fund Me site:
http://www.gofundme.com/uldcw0
Our Key West island music store aka Bone Island Music – guitar ukulele bass drum piano violin & cello lesson sale & repair shop is OPEN regularish hours Mon 11am-7pm
Island Guitar Ukuleke Piano Drum &Violin lesson studio & store is OPEN & “getting by with a little HELP from my friends”
Our Key West island music store – guitar ukulele bass drum piano violin& cello lesson sale & repair shop is OPEN regularish hours Mon 11am-8pm
Tues. noon-7p
Wed. 11a-7p
Thur. Noon-7p
Fri 11a-7p
Sat 11a-5p
Sunday by appointment ONLY
1109 Key Plaza, Key West, FL 33040
305-414-8056
www.IslandGuitar.com
Thor, USA Infantryman Ted “Bear” & Super Dad will be there to lend Nicky a hand kicking his cancer’s butt @ Miami Children’s Hospital
We are going to Miami Children’s Hospital for a two month stretch of some cancer ass woopin’ butt kicking chemotherapy, tons of prayers, lots of love and a couple superheroes waiting to lend a hand!!!!!!
Thor, USA Infantryman Ted “Bear” AND Super Dad will be there to lend Nicky a hand kicking his cancer’s butt – BIG TIME!!
Happy Father’s Day to my dad Quint Sorbelli & my grandfather Paul “Bonzo” Sechevich
No rules at Miami Children’s Hospital against some.tickling and some laughing during chemotherapy is there??
Happy Father’s Day to my dad Quint Sorbelli & my granddad Paul Sechevich “Bonzo” keep rocking on, moving forward, and blessing UP!
Ironically this is the BEST Father’s Day so far for me as a dad. A second chance at my son’s life beats the living crap out of a new coffee cup or sweatshirt, lawnmower, drill or even sports car or yarch! – any day!! I have NEVER been so grateful in my life. My family is so surrounded with love and prayers and positive vibes that I can feel it in my heart, soull, spine, tingling on the back of the neck AND the hair on my arms stands up. We are glowing with hope and gratitude. Thanks for all the best dad day ever!!!
OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/
OFFICIAL UP TO DATE everything Nicky Sorbelli. https://sorbelli.com/category/nicky-sorbelli/
To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0