PLEASE SHARE. Memorial service to honor Nicky’s life will be held on Higgs Beach in Key West 3/3/16 Thursday March 3rd 2016 at 5pm until sunset ?? A party to celebrate his life, his bravery during his epic battle with blood cancer and to thank him for being an inspirational hero to so many!!! Sharing of great memories, laughter, music and dancing are all on the agenda.
Instead of flowers I ask that you donate to his sister Leela Sorbelli because we use all her college savings fund fighting her brother Nicky’s cancer – now we are in the process of building it back up. Please help us – it took is 15 years to save it and now only have less than three years to build it back up yes she starts college in under four years !!!!! OMG)
A memorial service for my 10yr old son “Nicky” Nicholas Wayne Sorbelli born 6/29/05 & passed battling cancer on 2/17/16 will be held on March 3rd, 2016 at Higgs Beach in Key West 5pm til sunset or later?!?
We will spend our time doing what he loved MOST – Remembering good stories – Celebrating life – Laughing – Joyful Tearing – Playing – Fishing – Dancing – Partying!!!
Thanks to everyone of our family and friends who supported us during this time of need, both emotionally by being there for hugs but also financially by holding the fundraisers and starting the donations account AND for ALWAYS supporting our little family owned and run music lesson sales and service shop in Key West AND Dallas!!
RIP Nicky Wayne Sorbelli 06/29/05-2/17/16. Son, brother, grandson, great grandson, cousin, nephew, classmate, student teammate, friend, & inspirational hero passed away in the arms of his sister, mom and dad last night while battling his blood cancer.
Outside exploring nature was surely one of Nicky’s favorite things to do. He was quick to name every fish or identify lizards and birds. One of many things Nicky loved and often enjoyed doing was to go “exploring”. We had some epic adventures in and off the waters of Key West as well as off road mountain explorations and “creek walking adventures” back at Nanny and Poopy’s home in NEPA.
Nicky preferred being outside (when not conquering a video game). We’d take him outside the hospital every chance we could for as long as we could and he loved it!!
Nanny & Poppy Sorbelli are always there and willing to lend a helping hand or two.
Nanny relieving some terrible muscle spasms with one of her family famous neck and back massages – one of Nicky’s favorite things in the world since he was an infant, was a good back or neck massage. He even loved his tummy rubbed.
Nicky was a very hard fighting kid who even stayed in school, by way of his lap top and Skype, right until his last day. – he was VERY determined and driven.
Nicky always loved sports. Just days before he got diagnosed with his blood cancer he did the SUP (stand up paddleboard) race in Key West.
Nicky was known for having a GREAT sense of humor. In fact, while in the hospital, he’d hang a joke-of-the-day up in his hospital room everyday so the nurses and Doctor’s would have a new laugh each day – Nicky was my hero on many levels – his passion for ALWAYS trying to make people feel better is one of them.
I loved my little Lion’s long golden hair. Even though he’d often be mistaken for a little girl – he still liked to keep his hair LION long!
Nicky always loved fishing. It was one of his favorite things to do. Thank you my friend Tim “Commander Hawk” for the awesome fishing trips on your boat.
As most of you reading this know, my son Nicky Sorbelli has been fighting T-Cell Lympblastic Lymphoma since his diagnosis May 2015 – his cancer became chemo resistant so they had to switch to a harder chemo and a bone marrow transplant.
Nicky’s last PET scan showed live cancer activity in his chest where it was originally in the lymph nodes in front of and around his thymus.
He is getting a blood transfusion (hemoglobin) as I type this. He is going in for a biopsy to verify the exact diagnosis of what they are still calling T-Lymphoblastic Lymphoma and this would be considered a recurrence as they were pretty sure it was all gone.
The doctors here at Miami Childrens Hospital have sent all of Nicky’s info to the leading children’s hospitals in the country and four of the top lymphoma doctors in the nation for a review in front of the world’s round table of thinkers in this stuff.
So far everyone agrees to hit it back with a different chemo that is kept in reserve just in case cancer builds resist endive to the first chemo- which his obviously did. So far all say to prepare for a bone marrow transplant. So we are looking for a bone marrow match donor!
We have been praying harder that ever and are asking everyone to buckle down and pray & mediate, please go now before whatever power that you call God, and beg for some positivity & help in Nicky’s direction.
We need to start looking for a bone marrow match for Nicky’s transplant. You can get a free home test at www.BeTheMatch.org
Thanks and as always I will keep everyone posted as we go, as I can.
We are heading back to Miami today from our miracle Thanksgiving break to start the last four-six weeks of intense treatment (the hardest and scariest part) then down to once a month chemo infusions for a year and a half and chemo by pill for the next three years after this phase. It not easy but he is winning the war on his cancer and kicking cancers ASS one cell at a time!!!
We had a great Thanksgiving at home with family and friends and got some much needed rest and recouperation as we are getting ready for the hardest and most intense part of Nicky’s chemotherapy.
Please keep your fingers crossed and keep sending the prayers and well wishes PLEASE! We are living on prays by the pound right now.
Bumper stickers for sale at Wayne’s World Music Dallas Pa and Island Guitar aka Bone a island Music Key West or just msg, text call or email us Many thanx. CONTACT http://islandguitar.com/contact-location/
“Miracle Blues From Outer Space” TODAY’S soundtrack for Nicky Sorbelli’s EPIC ASS KICKING of his blood cancer! The Sorbelli family got a holiday miracle yesterday when after Nicky’s chemotherapy we got to leave the Miami Children’s Hospital & come back home because his blood counts were holding up so well & fighting so strong!!! He isn’t scheduled for any more chemo until Dec 14th so a little break is just amazing for him and us right now!
It’s a feeling I can’t explain – I’m so happy! There aren’t any words for the feelings that accompany getting out of the hospital and chemotherapy UNEXPECTEDLY the day before Thanksgivibg! It’s a true holiday miracle and we are very very thankful – it’s perfect!
As we drive down US1 heading back home – I am getting calls and texts and emails from my music shop in Key West that there was a very special person hanging out and celebrating the holiday on Duval street Key West – a one and only ROBERT PLANT. Yep that is special and he is probably cool to party with and hang with – but all I can say – and I say with much humility and respect – “MOVE OVER ROBERT PLANT NICKY SORBELLI is coming back to town!!” Robert you & Santa Clause may have to wait in line for the attention this year if Nicky is back in town because he’s the coolest of the cool!
And Robert his hair was as EPIC as yours back in the day. He’s Lion at heart – a Golden Child God
We were training on being cancer killing Heros and keeping positive so that we may unleash on the beast cancer a serious butt kicking.
We have to be tough REAL tough – ZOMBIE TUFF !!! So we practicing getting ZOMBIE on today’s catch so we are prepared to take on Nicky’s blood cancer.
We are getting ready to go in for phase 3 of 4 intense chemotherapy on Tuesday morning. We were at home in Key West for a few days of “rest/fishing 😃👍” – getting ready to head back to Miami in a few hours. It would have been great to see our friends this weekend but so sorry we couldn’t make it to Jazz Cafe Benefit for Nicky (we were under doctor’s orders to avoid anyone but immediate family & avoid all crowds (because Nicky’s immune system is very compromised at the moment as the chemotherapy does its job on the cancer) which makes fishing on a boat in the gulf of Mexico away from everything and everyone a relatively SAFE but very fun activity (except for the swimming with the SHARKS part lol just kidding)
I’m asking in advance to please keep sending prayers!! Thank you
Updates at www.Sorbelli.com
List of Nicky benefit concerts http://islandguitar.com/nicky-sorbelli-fundraiser/
We are getting ready to go in for phase 3 of 4 intense chemotherapy on Tuesday morning. We were at home in Key West for a few days of “rest” “fishing 😃👍” – getting ready to head back to Miami in a few hours. It would have been great to see our friends this weekend but so sorry we couldn’t make it to Jazz Cafe Benefit for Nicky (we were under doctor’s orders to avoid anyone but immediate family & avoid all crowds (because Nicky’s immune system is very compromised at the moment as the chemotherapy does its job on the cancer) which makes fishing on a boat in the the gulf if Mexico away from everything and everyone is a SAFE and still very fun activity (except for swimming with the SHARKS lol)
I’m asking in advance to please keep sending prayers!! Thank you