Wayne & Nicky Sorbelli fishing at Matheson Hammock Park Lagoon in Miami
After a visit from a clinic nurse for a shot of morning chemotherapy, Nicky caught some rest, then he Jamie & I caught some FISH & FAMILY FUN at Matheson Hammock Park Lagoon in South Miami.
During this phase of chemotherapy, phase two of four, we stay at our Coconut Grove apartment because it’s only 12 minutes to the Miami Children’s Hospital. During this phase, while low blood counts are a normal and nessessary part of the treatment, if Nicky should run a fever or begin to get sick, we need to administer antibiotics and medicines within the hour, and unfortunately for us, the Dr’s at the Lowerr Keys Medical center or anywhere else in the keys are NOT trained in how to access a heart port like Nicky has, making any mild medical emergency in Key West for Nicky, a real emergency. So we are staying close to the Miami Children’s Hospital for now.
Here is my :58 second prayer song “Ukulele Side Blues” dedicated to NICKY’s fightjng cancer.
Some Sorbelli Family time, Jamie, Nicky and I at Fairchild Botanical Gardens, Miami Florida. When having a good day with good blood counts,good white blood cell counts, days with energy to spare (while kicking cancer’s ass), we explore around beautiful Coconut Grove & South Miami area.
Nicky Wayne Sorbelli playing in Coconut Grove Miami w/friends from Key West
Some “mind over matter” training over the past few days had helped Nicky break cancer’s “stop eating” spell – it was not an easy battle, but Nicky wooped its ass & his hunger came back with a vengeance.
Shortly after eating his energy came back & then, and with perfect timing, a friend of Nicky’s from Key West visited us at our Miami apartment for the evening and is coming back again to play tomorrow!
We want to thank every single person who sent prayers and positive thoughts and messages and encouraging emails etc. thank you. The good intentions and prayers payed off and worked and helped us make it through “a pretty rough” past few days.
Many many thanks to Nicky for being such a warrior. He’s my little lion cub “Nicky the Lionheart”
Super extra special thanks to my wife and Nicky’s mother & MOM Jamie Maniskas Sorbelli – she is the floor from which my world begins to be built -period.
Nicky Wayne Sorbelli chillin’ in Miami, missing Key West typing on
One cancer ass kicking day at a time,,, but yesterday it was almost kicking our ass, it was a little, but I think we bounced off of a “bottom” and pray that today is better. I have a feeling it will be better today.
Nicky is sleeping right now so I’m just praying and reading over the posts by friends and all the positive vibes and prayers out there on my web sites and email and texts. It’s so awesome and uplifting. It really helps us to have all the digital age support – there would be a big void if we didn’t keep up digitally and with our web site and messages and emails!!!!
When it comes right down to it – we’ve been keeping track – when we reach out for prayers and help – its stronger than chemo — its stronger than food or vitamins — some powerful stuff, the power of positive thought. The cancer & or chemo is tricking Nicky into not eating much at all, really if he doesn’t eat today we’ll be going into the hospital for sure 🙁
There is so much psychology going on here at the moment at Casa Sorbelli. We can’t make too big of a fuss over eating or it creates too much pressure, and defense/offense position open up. We’re not playing that game. Instead we are trying to take the TEAM approach today. We will use every “mind over matter” advantage ala small portions on plate; cool or room temp NOT hot as it tends to make nausea worse; disguising non attractive food for colorful happy looking food; shakes shakes shakes and more shakes. U can blend up just about anything and make it taste like just about anything – I’m hoping.
It’s a non stop struggle almost a battle to get him to eat even 1 cheerio. This is the first time he has shut out food. – so it rocked our boat & his, yesterday unfortunately he is very weakened by now not only the chemo but also the lack of any food. It had taken from 9am-7pm yesterday to drink half of a protein shake (which is not enough).
Today when he wakes up we are going to keep calm and try to teach him more about Mind Over Matter. I’m taking it as a Good sign that right before he passed out on the couch yesterday after a short walk, he raised his fist in the air and proclaimed “take that cancer, your not getting me” and he punched his closed clinched fist in the air. I was so proud of him. I knew as he was passing out that today was going to be a better day, or least a better day of the mind and of taking big control back – TAKING CONTROL where you can, like trying to eat and exercise is essential for healing.
Like my dear family friend, Key West chiropractor Michael Norman who’s offer of an X-ray saved Nicky’s life, says :
“Step 1 one :Maximize the Mind!!!!!”
Forward thinking, forward moving, bless up/\
For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :
Wayne Sorbelli (Nicky Fund 2487)
2520 Harris Ave.Apt 1
Key West. FL 33040
Wayne & Nicky Sorbelli thank family & friends for supporting Sorbelli.com & IslandGuitar.com
The entire extended Sorbelli family are VERY grateful to all our Key West & NEPA Pennsylvania family & friends who are following our lives, on Sorbelli.com & IslandGuitar.com helping us stay in touch & in tune. Our family music shop has stayed open with tons of help from our friends. Thank you David Warren, James King III, Shana Gaskill, Rusty Applebee, Beth Brown , Marilyn & Dean Borland & Briana Castillo. Sheila Keezer, Ted Shudak, Quint & Cathy Sorbelli. The Sechevich family. Penny Maun, Layla Laser, one million others.
HELP Nicky Sorbelli my 9yr old son whom we just discovered has T Lymphoblastic Lymphoma (cancer) & we badly need everyone to HELP & PRAY & SHARE.
So far he is responding well to treatment. Treatment plan for now is Thurs – Saturday in Miami children’s hospital every week until Jan 2016, then once a month for 2 years. So it’s going to be a long strange trip to say the least.
For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :
Wayne Sorbelli (Nicky Fund 2487)
Harris Ave.Apt 1
Key West. FL 33040
Nicky & I are typing and loading pictures on Nicky’s own page on our Sorbelli family website at https://sorbelli.com/nicky/
To HELP Nicky Sorbelli my 9yr old son whom we just discovered has T Lymphoblastic Lymphoma (cancer) & we badly need everyone to HELP & PRAY & SHARE.
So far, he is responding well to treatment. Treatment plan for now is Thurs – Saturday in Miami children’s hospital every week for next seven months. Then once a month for three years. So it’s going to be a long strange trip.
Their Go Fund Me site: http://www.gofundme.com/uldcw0
The Sorbelli’sA million zillion thanx from my son Nicky and the rest of the Sorbelli Quint Sorbelli familyfor really showing what a family IS.
The power of focused wishes and prayers are so awesome during this time of needing strength !! I also need to say thank u to my extra special wife Jamie Jamie Maniskas Sorbelli and daughter Leela for all supporting each other in this time. !!! And thank you Nicky for being the best son brother and friend in the world. Really!!
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