Category Archives: Nicky’s Cancer Benefits & Fundraisers

“Mind Over Matter” training for a few days broke cancer’s “stop eating” spell & his hunger came back with a vengeance – his energy came back & his friend from Key West visited us at our Miami apartment.

 

Nicky Wayne Sorbelli playing in Coconut Grove Miami w/friends from Key West
Nicky Wayne Sorbelli playing in Coconut Grove Miami w/friends from Key West

Some “mind over matter” training over the past few days had helped Nicky break cancer’s “stop eating” spell – it was not an easy battle, but Nicky wooped its ass & his hunger came back with a vengeance.

Shortly after eating his energy came back & then, and with perfect timing, a friend of Nicky’s from Key West visited us at our Miami apartment for the evening and is coming back again to play tomorrow!

We want to thank every single person who sent prayers and positive thoughts and messages and encouraging emails etc. thank you. The good intentions and prayers payed off and worked and helped us make it through “a pretty rough” past few days.

Many many thanks to Nicky for being such a warrior. He’s my little lion cub “Nicky the Lionheart”

Super extra special thanks to my wife and Nicky’s mother & MOM Jamie Maniskas Sorbelli – ¬†she is the floor from which my world begins to be built -period.

OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: http://sorbelli.com/category/nickys-cancer-benefits-fundraisers/

To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0

One cancer ass kicking day at a time,,, but yesterday it was almost kicking our ass, it was a little, but I think we bounced off of a “bottom” Sorbelli.com

Nicky Wayne Sorbelli chillin' in Miami, missing Key West typing on
Nicky Wayne Sorbelli chillin’ in Miami, missing Key West typing on

 One cancer ass kicking day at a time,,, but yesterday it was almost kicking our ass, it was a little, but I think we bounced off of a “bottom” and pray that today is better. I have a feeling it will be better today.

Nicky is sleeping right now so I’m just praying and reading over the posts by friends and all the positive vibes and prayers out there on my web sites and email and texts. It’s so awesome and uplifting. It really helps us to have all the digital age support – there would be a big void if we didn’t keep up digitally and with our web site and messages and emails!!!!

When it comes right down to it – we’ve been keeping track – when we reach out for prayers and help – its stronger than chemo — its stronger than food or vitamins — some powerful stuff, the power of positive thought. The cancer & or chemo is tricking Nicky into not eating much at all, really if he doesn’t eat today we’ll be going into the hospital for sure ūüôĀ

There is so much psychology going on here at the moment at Casa Sorbelli. We can’t make too big of a fuss over eating or it creates too much pressure, and defense/offense position open up. We’re not playing that game. Instead we are trying to take the TEAM approach today.  We will use every “mind over matter” advantage ala small portions on plate; cool or room temp NOT hot as it tends to make nausea worse; disguising non attractive food for colorful happy looking food; shakes shakes shakes and more shakes. U can blend up just about anything and make it taste like just about anything – I’m hoping.

It’s a non stop struggle almost a battle to get him to eat even 1 cheerio. This is the first time he has shut out food. – so it rocked our boat & his, yesterday  unfortunately he is very weakened by now not only the chemo but also the lack of any food. It had taken from 9am-7pm yesterday to drink half of a protein shake (which is not enough).

Today when he wakes up we are going to keep calm and try to teach him more about Mind Over Matter. I’m taking it as a Good sign that right before he passed out on the couch yesterday after a short walk, he raised his fist in the air and proclaimed “take that cancer, your not getting me” and he punched his closed clinched fist in the air. I was so proud of him.  I knew as he was passing out that today was going to be a better day, or least a better day of the mind and of taking big control back – TAKING CONTROL where you can, like trying to eat and exercise is essential for healing. 

Like my dear family friend, Key West chiropractor Michael Norman who’s offer of an X-ray saved Nicky’s life, says : 

“Step 1 one :Maximize the Mind!!!!!”

Forward thinking, forward moving, bless up/\

For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :
Wayne Sorbelli (Nicky Fund 2487)
2520 Harris Ave.Apt 1
Key West. FL 33040

OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: http://sorbelli.com/category/nickys-cancer-benefits-fundraisers/

To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0

WAYNE & NICKY SORBELLI HANGING IN MIAMI WHILE WHOOPIN’ CANCERS ASS ONE DAY AT A TIME! GRATEFUL TO ALL OUR KEY WEST & NEPA FAMILY & FRIENDS FOLLOWING SORBELLI.COM & ISLANDGUITAR.COM HELPING US STAY IN TOUCH & IN TUNE.

Wayne & Nicky Sorbelli thank family & friends for supporting Sorbelli.com & IslandGuitar.com
Wayne & Nicky Sorbelli thank family & friends for supporting Sorbelli.com & IslandGuitar.com

The entire extended Sorbelli family are VERY grateful to all our Key West & NEPA Pennsylvania family & friends who are following our lives, on Sorbelli.com & IslandGuitar.com helping us stay in touch & in tune. Our family music shop has stayed open with tons of help from our friends. Thank you David Warren, James King III, Shana Gaskill, Rusty Applebee, Beth Brown , Marilyn & Dean Borland & Briana Castillo. Sheila Keezer, Ted Shudak, Quint & Cathy Sorbelli. The Sechevich family. Penny Maun, Layla Laser, one million others.

HELP Nicky Sorbelli my 9yr old son whom we just discovered has T Lymphoblastic Lymphoma (cancer) & we badly need everyone to HELP & PRAY & SHARE.
So far he is responding well to treatment. Treatment plan for now is Thurs ‚Äď Saturday in Miami children‚Äôs hospital every week until Jan 2016, then once a month for 2 years. So it‚Äôs going to be a long strange trip to say the least.
For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :
Wayne Sorbelli (Nicky Fund 2487)

Harris Ave.Apt 1

Key West. FL 33040

Nicky & I are typing and loading pictures on Nicky’s own page on our Sorbelli family website at http://sorbelli.com/nicky/

OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: http://islandguitar.com/nicky-sorbelli-fundraiser/

To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0

WIN REPLICA OF STEVIE RAY VAUGHN‚ÄôS 1962 FENDER STRAT ‚Äď REBUILT W/LOVE & SKILL BY BUTCH FRABLE (FAT CAT CUSTOM GUITARS) UP FOR AUCTION For NICKY SORBELLI CANCER BENEFIT Raffle tickets sold until 7/31/15 GOD LUCK

Nicky Cancer Benefit Concert NEPA SRV Fender Strat donated by Butch Frable
Nicky Cancer Benefit Concert NEPA SRV Fender Strat donated by Butch Frable

This replica of Stevie Ray Vaughn’s 1962 Fender Strat was rebuilt with much love and skill by Butch Frable for Fat Cat Custom Guitars.

Butch has generously donated this guitar for auction at the benefit for Nicky Sorbelli, along with this gig bag, generously donated by Jack Gretz of Northeast Music Center.
Thank you tall the bands that played at my July 12th 2015 beefier concert!!! You guys all ROCK!! Special thanks to my grandfather “Poppy” Sorbelli for sitting in and playing drums with StingRay blues band on Kansas City & WipeOut (one of my favorites) ¬†Love you Poppy!!!!

Nicky Sorbelli Cancer Killer Benefit Concert NEPA
Nicky Sorbelli Cancer Killer Benefit Concert NEPA

HELP Nicky Sorbelli my 9yr old son whom we just discovered has T Lymphoblastic Lymphoma (cancer) & we badly need everyone to HELP & PRAY & SHARE.
So far he is responding well to treatment. Treatment plan for now is Thurs ‚Äď Saturday in Miami children‚Äôs hospital every week for next seven months. Then once a month for three years. So it‚Äôs going to be a long strange
For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :

Wayne Sorbelli (Nicky Fund 2487)

2520 Harris Ave.Apt 1

Key West. FL 33040

OFFICIAL UP TO DATE everything Nicky Sorbelli. http://sorbelli.com/category/nickyhttp://sorbelli.com/category/nicky-sorbelli/-sorbelli/

OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: http://sorbelli.com/category/nickys-cancer-benefits-fundraisers/

To donate to Their Go Fund Me site: http://www.gofundmehttp://de.gofund.me/uldcw0.com/uldcw0/

Nicky Sorbelli “Kicking Cancers Butt – One Block at a Time” T-Shirts

 

Nicky Sorbelli ‚ÄúKicking Cancer‚Äôs Butt One Block at a Time‚ÄĚ TShirts
Nicky Sorbelli ‚ÄúKicking Cancer‚Äôs Butt One Block at a Time‚ÄĚ TShirts

 

Call us by phone or leave us an email for shirt orders:

Island Guitar Key West (Home of the BONE ISLAND MUSIC CREW) 1109 Key Plaza Key West, Fl 33040 Phone: 305-414-8056

Island Guitar Dallas (Home of the ¬†Wayne’s World Music Crew)¬†2611 Memorial Hwy Dallas, Pennsylvania 18612 570-674-1995 ¬† ¬†

 

OFFICIAL UP TO DATE everything Nicky Sorbelli. http://sorbelli.com/category/nicky-sorbelli/

OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli:  http://sorbelli.com/category/nickys-cancer-benefits-fundraisers/

To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0

 

NICKY SORBELLI Good news! Prayers, positivity, caring, & sharing from family & friends is KICKING CANCERS BUTT

Cancer Butt KIcker Nicholas "Nicky" Wayne Sorbelli & his Father.

Cancer Butt KIcker Nicholas “Nicky” Wayne Sorbelli & his Father.

The Sorbelli family just got GREAT news about Nicky!

Nicky’s¬†cancer is retreating!!!

The tumor had shrunk from larger than a grapefruit size, to the size of a piece of rice,  in just one month!!

His treatments, prayers,  caring, sharing of resources, LOVE and positivity are working!

NIcholas is ¬† “Kicking Cancer’s Butt, One Block at a Time”

For all updates & Nicky News  http://sorbelli.com/category/nickys-cancer-benefits-fundraisers/ 

TO MAKE DONATION:

Their Go Fund Me site:

http://www.gofundme.com/uldcw0

How to donate to Nicky Sorbelli Cancer Butt Kicking Fundraisers


To HELP Nicky Sorbelli my 9yr old son whom we just discovered has T Lymphoblastic Lymphoma (cancer) & we badly need everyone to HELP & PRAY & SHARE.
So far, he is responding well to treatment. Treatment plan for now is Thurs ‚Äď Saturday in Miami children‚Äôs hospital every week for next seven months. Then once a month for three years. So it‚Äôs going to be a long strange trip.
Their Go Fund Me site:
http://www.gofundme.com/uldcw0

For latest about Nicky’s Benefits and Fundraisers ¬†http://sorbelli.com/category/nickys-cancer-benefits-fundraisers/¬†

Jack’s Lemonade Stand Fundraiser for Nicky Sorbelli at Higgs Beach Key West 6/13/15 Saturday Morning 7am-? During the Tutu 10k Relay

Saturday morning 7am-?  6/13/15 at Higgs Beach Key West during the Tutu 10k Relay

Lemonade Stand for Nicky Fundraiser by The Normans and MaxHealth Key West

For up to date list of official Nicky news and benefits etc http://sorbelli.com/category/nickys-cancer-benefits/ 

to donate directly to their GoFundMe account http://www.gofundme.com/uldcw0

A million zillion thanx from my son Nicky and the rest of the Sorbelli family

The Sorbelli's
The Sorbelli’s
A million zillion thanx from my son Nicky and the rest of the Sorbelli Quint Sorbelli‚Äč familyfor really showing what a family IS.

The power of focused wishes and prayers are so awesome during this time of needing strength !! I also need to say thank u to my extra special wife Jamie Jamie Maniskas Sorbelli‚Äč and daughter Leela for all supporting each other in this time. !!! And thank you Nicky for being the best son brother and friend in the world. Really!!