“Forward Thinking, Forward Moving” slogan of positivity shields and defends my family while we battle the ugly disease Cancer!!


Nicky takes an ambulance (with awesome Nurse Lauren Cagen)  from Miami Children’s Hospital MCH to Sylvester Comprehensive Cancer Center SCCC  everyday for a week for radiation treatments that worked to shrink the mass in his chest by more than 50% and the mass in his neck is gone!! It’s good news for him and my family to know that the tumor is on the retreat!

Chemotherapy started again last night/this morning at 1am – a 24 hour infussion. We pray that the chemo, vitamins & prayers hits the cancer cells HARD. We are hoping to drop the hammer of GOD down on this blood cancer so that he gets back into remission, where he’ll again become a candidate for a bone marrow transplant and then move forward -we pray!!

DONATE & HELP Nicky Sorbelli & his family through his gofundme https://www.gofundme.com/uldcw0

Nicky Sorbelli getting radiation to help shrink the mass in his chest and neck. Keep the prayers & help coming. Thanks for caring & sharing

  

Nicky’s Condition changed recently in that his cancer has become resistant to his current chemo and a mass came back around his heart, pushing on the lungs, arteries, diaphragm, up thought the left side of his neck and pushing on nerves. Unfortunately unless he goes into complete remission again he won’t be a candidate for a bone marrow transplant. At this point we are trying to see if there is anything left to do to try to get to him into remission. We are trying radiation today and for the next almost two weeks to try to shrink the mass’s  size to give Nicky some pain relief. 

To DONATE & HELP NICKY KEEP FIGHTING CANCER   https://www.gofundme.com/uldcw0

10yr old Nicky Sorbelli is still in hospital & needs another platelet blood transfusion. HELP by sharing this post to raise awareness of his need for REMISSION, PRAYERS, SUPPORT & a bone marrow match donor! www.Sorbelli.com

  
As most of you reading this know, my son Nicky Sorbelli has been fighting T-Cell Lympblastic Lymphoma since his diagnosis in May 2015 – his cancer became chemo resistant in late November so they had to switch his treatment to a MUCH harder chemo & soon radiation – leading to a bone marrow transplant. For right now, all the prayers, energy & focus is on getting the blood cancer & mass around his heart to stop growing  & retreat, at which point Nicky will become a candidate for bone marrow transplant. Until his cancer goes into remission it’s a VERY scary scenario. Pls FOLLOW, SHARE, & spread the word of our search for health, no pain, blood & a bone marrow match – GOD BLESS

10 yr old son, cancer battler & inspirational hero Nicky Sorbelli & his family father Wayne, mother Jamie & sister Leela go on local news TV in Miami, Key West, Wilkes-Barre, Scranton, NEPA (ABC TV affiliates) asking the nation for FREE bone marrow donor testing at www.BeTheMatch.org 

DONATE &.HELP Nicky Sorbelli & his family through his gofundme account https://www.gofundme.com/uldcw0

Nicky Sorbelli & Family go on Miami, Key West, Wilkes-Barre, Scranton, NEPA local news ABC TV affiliates asking the nation for FREE bone marrow donor testing to save cancer battler & inspirational HERO Nicky’s life www.BeTheMatch.org


10 yr old son, cancer battler & inspirational hero Nicky Sorbelli & his family father Wayne, mother Jamie & sister Leela go on local news TV in Miami, Key West, Wilkes-Barre, Scranton, NEPA (ABC TV affiliates) asking the nation for FREE bone marrow donor testing at www.BeTheMatch.org

As most of you reading this know, my son Nicky Sorbelli has been fighting T-Cell Lympblastic Lymphoma since his diagnosis in May 2015 – his cancer became chemo resistant in late November so they had to switch his treatment to a harder chemo and a bone marrow transplant.
We need to start looking for a bone marrow transplant match for Nicky now ASAP because the results can take up to two weeks to get a potential donor’s results back. You can get a free home mouth swab test kit! https://join.bethematch.org/Nicky%20Sorbelli/ **

** Free mouth swab test to register & if you are a match its just a shot & blood draw to actually donate for most transplants!

Monetary donation can be made directly to Nicky & his family at First State Bank of the Floria Keys: payable to Sorbelli. Memo Nicky Sorbelli donation fund (2487)

Official list of benefit concerts and fundraisers http://islandguitar.com/nicky-sorbelli-fundraiser/

DONATE & HELP Nicky Sorbelli & his family through his gofundme account https://www.gofundme.com/uldcw0

Thanks everyone for all the positive messages  and as always I will keep everyone posted as we go, as I can.

Follow Nicky’s own words as he types on his very own blog at www.NickySorbelli.com

HELP Nicky Sorbelli needs a bone marrow transplant donor match. Free mouth swab test to register & a shot & blood draw to actually donate for most transplants!

  
As most of you reading this know, my son Nicky Sorbelli has been fighting T-Cell Lympblastic Lymphoma since his diagnosis May 2015 – his cancer became chemo resistant so they had to switch to a harder chemo and a bone marrow transplant.

 We need to start looking for a bone marrow match for Nicky’s transplant. You can get a free home mouth swab test kit!  https://join.bethematch.org/Nicky%20Sorbelli/

PLEASE HELP & SHARE that Nicky Sorbelli needs a bone marrow transplant donor match. 

Free mouth swab test to register & a shot & blood draw to actually donate for most transplants! 

Monetary donation can be made dorectky to First State Bank payable to Sorbelli. Memo Nicky Sorbelli donation fund 2487

Official list of benefit concerts and fundraisers http://islandguitar.com/nicky-sorbelli-fundraiser/

Nicky’s gofundme account https://www.gofundme.com/uldcw0 

Thanks everyone for all the positive messages amd and as always I will keep everyone posted as we go, as I can. 

Follow Nicky’s blog at www.NickySorbelli.com

Sorbelli’s need a Christmas Holiday Miracle! Cancer decided to fight harder so we need to fight back harder & asking for prayers & positivity to HELP us defeat Nicky’s Lymphoma! Looking for a bone marrow match donor!

  
Nicky’s last PET scan showed live cancer activity in his chest where it was originally in the lymph nodes in front of and around his thymus. 

He is getting a blood transfusion (hemoglobin) as I type this.  He is going in for a biopsy to verify the exact diagnosis of what they are still calling T-Lymphoblastic Lymphoma and this would be considered a recurrence as they were pretty sure it was all gone. 

The doctors here at Miami Childrens Hospital have sent all of Nicky’s info to the leading children’s hospitals in the country and four of the top lymphoma doctors in the nation for a review in front of the world’s round table of thinkers in this stuff. 

So far everyone agrees to hit it back with a different chemo that is kept in reserve just in case cancer builds resist endive to the first chemo- which his obviously did.  So far all say to prepare for a bone marrow transplant. So we are looking for a bone marrow match donor!

We have been praying harder that ever and are  asking everyone to buckle down and pray & mediate, please go now before whatever power that you call God, and beg for some positivity & help in Nicky’s direction. 

We need to start looking for a bone marrow match for Nicky’s transplant.  You can get a free home test at www.BeTheMatch.org

Thanks and as always I will keep everyone posted as we go, as I can. 

Follow Nicky’s blog at www.NickySorbelli.com

Reggae on the Rock this SUNDAY – BENEFIT CONCERT FOR NICKY SORBELLI – This Sunday December 18th, 2015 Stock Island Village Marina, Shrimp Road, Stock Island.

Monetary donation can be made dorectky to First State Bank payable to Sorbelli. Memo Nicky Sorbelli donation fund 2487

Official list of benefit concerts and fundraisers http://islandguitar.com/nicky-sorbelli-fundraiser/

Nicky’s gofundme account https://www.gofundme.com/uldcw0 

Nicky gets a PET scan today to see if any cancer is left and to check on his Thymus. Please send prayers!

  
PRAYERS NEEDED RIGHT NOW!! Nicky is going in for PET scan 8am-10am to show if there is any cancer left. 

 Please friends and family pray up a storm this morning and until j post the news either way!! 

Forward thinking, Forward moving!!

Monetary donation can be made directky to First State Bank Of The Florida Keys : check payable to SORBELLI note in memo (donation account 2487)

OR

Nicky’s gofundme account https://www.gofundme.com/uldcw0

Nicky & I are typing and loading pictures of benefit concerts and fundraisers on http://islandguitar.com/nicky-sorbelli-fundraiser/

Nicky’s own page on our Sorbelli family website at www.NickySorbelli.com

Heading back to Miami for the last 4-6 weeks of intense chemo then 1.5 yrs of monthly chemo infusions & 3 more yrs of chemo by pill – PLEASE keep sending prayers & HELP Nicky’s direction. Forward Thinking, Forward Moving!!

  
We are heading back to Miami today from our miracle Thanksgiving break to start the last four-six weeks of intense treatment (the hardest and scariest part) then down to once a month chemo infusions for a year and a half and chemo by pill for the next three years after this phase. It not easy but he is winning the war on his cancer and kicking cancers ASS one cell at a time!!! 

We had a great Thanksgiving at home with family and friends and got some much needed rest and recouperation as we are getting ready for the hardest and most intense part of Nicky’s chemotherapy. 

Please keep your fingers crossed and keep sending the prayers and well wishes PLEASE! We are living on prays by the pound right now. 

Folow Nicky @ www.NickySorbelli.com
Updated list of benefits and fundraisers http://islandguitar.com/nicky-sorbelli-fundraiser/ 

Nicky’s gofundme account https://www.gofundme.com/uldcw0 

  
Bumper stickers for sale at Wayne’s World Music Dallas Pa and Island Guitar aka Bone a island Music Key West or just msg, text call or email us Many thanx. CONTACT http://islandguitar.com/contact-location/
  

Sorbelli family got a Thanksgiving holiday miracle when after Nicky’s chemotherapy we got to leave the Hospital & come back home to Key West because his blood counts were holding up so well & fighting so strong


“Miracle Blues From Outer Space” TODAY’S soundtrack for Nicky Sorbelli’s EPIC ASS KICKING of his blood cancer! The Sorbelli family got a holiday miracle yesterday when after Nicky’s chemotherapy we got to leave the Miami Children’s Hospital & come back home because his blood counts were holding up so well & fighting so strong!!! He isn’t scheduled for any more chemo until Dec 14th so a little break is just amazing for him and us right now!
It’s a feeling I can’t explain – I’m so happy! There aren’t any words for the feelings that accompany getting out of the hospital and chemotherapy UNEXPECTEDLY the day before Thanksgivibg! It’s a true holiday miracle and we are very very thankful – it’s perfect! 
As we drive down US1 heading back home – I am getting calls and texts and emails from my music shop in Key West that there was a very special person hanging out and celebrating the holiday on Duval street  Key West – a one and only ROBERT PLANT. Yep that is special and he is probably cool to party with and hang with – but all I can say – and I say with much humility and respect – “MOVE OVER ROBERT PLANT NICKY SORBELLI is coming back to town!!” Robert you & Santa Clause may have to wait in line for the attention this year if Nicky is back in town because he’s the coolest of the cool! 

And Robert his hair was as EPIC as yours back in the day. He’s Lion at heart – a Golden Child God

   

 www.Sorbelli.com

The heart port was placed in Nicky’s chest via an operation just under the skin but atop the breast muscle. The lines were fished though his main arteries and directly into his heart for chemo infusion- then a lumbar puncture & spinal tap chemo. My hero Nicky Sorbelli

  
          Nicky Sorbelli, my 10yr old son, the bravest boy I’ve ever met – just had his finger picked to get blood work that showed he qualifies for his chemo today (that means his body can handle the chemo without it killing him) Now he just got his MediPort (heart port) activated (the heart port is a small rubber sphere similar to a super ball with a few IV lines that come off it. The port was placed in Nicky’s chest via a minor operation just under the skin but atop the breast muscle and the lines were fished though the main arteries and directly into his heart.  This is to protect his veins from the ongoing chemo treatment preventing burning and damage during infusions. The port goes directly to the Heart and pumped to entire body quicker and safer. To “activate” the port we put numbing cream on the bumble on his chest. Then the qualified nurse sticks a one inch 20 gauge needle into it then hooks any and all meds directly to the access needle not having to stick Nicky for any thing else during this stay at the hospital. Which is awesome because constant needles and children do NOT go well together.  

After the first chemo infusion Nicky will head down to minor procedures for a lunar puncture (spinal tap chemo)

Thanks for all the prayers and for the continued support with the fundraisers and benefit concerts – we are blessed by and because of you all. 

Follow Nicky’s own blog page: http://sorbelli.com/nicky/

List of Nicky Sorbeli Cancer KILLER benefit concerts: http://islandguitar.com/nicky-sorbelli-fundraiser/

Family website: www.Sorbelli.com

To donate to Nicky’s Cancer Killer Fund: https://www.gofundme.com/uldcw0

 
Once the heart port is activated and the IV lines hooked up, they hang the bags of chemo and medicines and let the infussions begin. 

It’s sit back and wait now.  In between the vicious spells of nasea  we like to play video games, paint with our artist friend Diana De Los Rios, or even play a little ukulele or guitar together. 

I should add that Nicky still does his school work every day and online skype lessons with his teacher almost daily – yes even while in the hospital Nicky WANTS to keep learning. His grades are great and he is moving through the ciriculum at a fast steady determined pace. He is truly my hero on so many levels. I am humbled by my 10 yr old son. Thank you God & Jamie for giving me such a wonderful soul – a wonderful person – my hero Nicky Sorbelli. 

Sorbelli