Nicky used a zillagram worth of energy on his health bar meter yesterday during NICKY SORBELLI VS. CANCER.
He got two bags of blood (hemoglobin) and a bag of platlets.
This morning when the sickness (nasea) hit him it did a bit harder than usual (typical of cancer and chemotherapy) but hen the cancer tried a sneaky and cowardly move, and tried to sneak up on him while he was sleeping – Nicky was ready for it and used a special move – an ancient secret prayer spell that a Super Hero showed me a long time ago.
As Nicky’s mind got stronger and he held his head high and his chin up and his arm up in the air middle fiber extended in a straight line – he looked the cancer right in its scared face and declared aloud – get out cancer – go back to hell where you came from you freeking wimp!!!
Then like a cross between an old Jedi night, and a young spider man ninja type, he does this super hero move with his arm and faster than the eye can see -then
BANG!
BANG!
POW!
Nicky’s color came back! He cracked a smile, turned on the PS4 video game system and says “Dad, I love You” then gets on with his gaming like nothing happened.
I’m like,,??? Holly Snizt WTF – he is so my hero – what a warrior!!!!
I LOVE YOU NICKY.
HEY CANCER “FU(K U I WON’T DO WHAT YOU TELL ME”!!!!!!! Inspired by Rage Against The Machine!!! The rainbow that showed up during these photos, really validate my feelings towards cancers in general, physical political social etc.
This Rage Against The Machine song “Killing In The Name” is DEDICATED TO MY SON NICKY SORBELLI. HEY CANCER “FU(K YOU I WON’T DO WHAT YOU TELL ME!!!
Chin up in the air, two clenched fists raised up high with middle fingers hard, Fu(k you cancer! We look you in your bully face, right in you eyes, and laugh, and taunt, and say boldly – Fu(k You, We Won’t Do What You Tell Us. You are powerless over the spell of LOVE and AFRAID of our positve thinking and forward moving thoughts – well FU$K you and be gone!!!!
Jamie, Nicky & Wayne Sorbelli Key West Guitar, Piano & Ukulele Lesson Studio Owners Relaxing in Coconut Grove 2015
It’s a long hard road but we are “getting by with a little help from our friends” !
We thank all of our family and friends for continuing to add funds to our gofundme account as this treatment is ongoing and INTENSE requiring both Jamie and I to rent an apt next to the Miami Children’s Hospital. Our key west home is just too far from the treatment and careNicky needs and to be traveling back and forth is not practical or safeand furthermore there is not a single person in the lower keys who knows how to work with my sons chemo heart port, which makes treating Nicky in a possible emergency a real problem. So we can’t work as our store and jobs and all my guitar students are 3.5 hours away from us now. . We are away from our home and friends. Yes we are living on the edge fighting for life and for finances. We r ripping through our life savings & this gofundme account to hold us over and pay our bills until this intense part of chemo is over at the end of this year when then I except to go back to work. FORWARD THINKING, FORWARD MOVING, BLESS UP!!
Here is my :58 second prayer song “Ukulele Side Blues” dedicated to NICKY’s fightjng cancer.
After a hemoglobin blood transfusion, chemo and a blood platelet transfusion Nicky rests, eats then wants to head to the movie theater by our aptartment in Coconut Grove – I’m all smiles!!
Thanks for all the prayers, caring, prayers and continues sharing of resources and THANK YOU Mr and Mrs anonymous for the movie ticket passes!!
We are at the Miami Children’s Hospital. Nicky’s blood levels dropped very low so we headed in for a blood transfusion yesterday where he got his chemo at the same time, then saline and hydration because he was puking so bad from the chemo he lost lots of fluids.
He started bleeding from his nose, mouth and rectum so he go a blood platelet transfusion which stopped the bleeedning THANK GOD!
He’s awake and recuperating now. They took another blood test a few minutes ago and now we wait to see if he’s needing more blood or if we can make out way back to out apt in Miami. The chemo is a hard road but it is kicking the cancers butt AMEN
It has certainly been another hard long day and night of fighting on the frontline of operation Kick Cancers Ass
Here is my :58 second prayer song “Ukulele Side Blues” dedicated to NICKY’s fightjng cancer.
Wayne & Nicky Sorbelli fishing at Matheson Hammock Park Lagoon in Miami
After a visit from a clinic nurse for a shot of morning chemotherapy, Nicky caught some rest, then he Jamie & I caught some FISH & FAMILY FUN at Matheson Hammock Park Lagoon in South Miami.
During this phase of chemotherapy, phase two of four, we stay at our Coconut Grove apartment because it’s only 12 minutes to the Miami Children’s Hospital. During this phase, while low blood counts are a normal and nessessary part of the treatment, if Nicky should run a fever or begin to get sick, we need to administer antibiotics and medicines within the hour, and unfortunately for us, the Dr’s at the Lowerr Keys Medical center or anywhere else in the keys are NOT trained in how to access a heart port like Nicky has, making any mild medical emergency in Key West for Nicky, a real emergency. So we are staying close to the Miami Children’s Hospital for now.
Here is my :58 second prayer song “Ukulele Side Blues” dedicated to NICKY’s fightjng cancer.
Nicky & Wayne Sorbelli experience the Planetarium at the Miami Science Museum
After a blood transfusion of two bags of blood over 7 hours, Nicky’s hemoglobin level is back up to above 8 which the doctors say is good for this stage of chemotherapy ARAC, which lowers the blood cell counts (t-cells) where Nicky’s cancer originated. This chemo treatment purposely lowers the body’s natural immune system, then we rebuild minus the cancer’s influence or presence.
We are back at our temporary apartment in Miami recuperating while exploring around some outside areas (gardens and museums) and SOME inside activities (play video games and guitars). When ones immune system is weak from illness or as part of treatment, one must avoid crowds of people inside or out & avoid inside closed areas with anyone at all – this minimizes the risk of illness or infection while the body is in this temporary but nessessary part of the treatment for “T-Cell Lypoblastic Lymphomo”, which is my son Nicky’s diagnosis.
We firmly believe that all of the praying and positive vibes sent by our family and friends indeed are just as responsible for Nicky’s recovery as the chemotherapy and modern technology are. The steady stream of social media and website messages and emails to Nicky and our family members by our friends and support groups gives Nicky, Jamie, Leela and all our family the boost of unprecedented courage, patience and willpower it takes to ease the blow of the chemo and focus and maximize the damage to the cancer cells and their influence. We believe that the cause is the cure! I really truly believe this! I believe everybody has cancer and kills cancer cells on a daily basis. Myself and friend Dr Michael Norman and his mentor Dr Charles Majors, believe that we figure out why Nicky’s body turned cancerous when it did and then how to prevent as well as kill the cancer presently existing and preventing new cancer cells from forming. Doing this kind of research WHILE going through the chemotherapy is very taxing. Not only are we kind of stuck between two often disagreeing and contrasting belief systems but also stuck between state laws and the insurance companies compliance – what they do and do NOT cover $$. One group believes in focusing in on killing the cancer with chemo , and the other approach is to use more natural and environmental factors and “outside the body behavior modifications” which either kill or prevent the cancer. I believe in combining both.
In Nicky’s case it WAS a chiropractor or natural approach that discovered his cancer – NOT modern technology or science. But immediately AFTER discovering the tumor in Nicky’s chest it was the CHEMO, modern technology and SIENCE that shrunk the mass, took all of the suffocating pressure off of his heart and lungs from the mass (tumor) inside his chest , stabilized his condition, and saved his life.
So any way you want to roll it up – go for it – but please keep the prayers and positive thoughts flowing Nicky’s way. Please don’t stop the stream of encouraging messages and emails. Please keep sharing our posts and spreading the word. They’re the better.
Here is my :58 second prayer song “Ukulele Side Blues” dedicated to NICKY’s fightjng cancer.
Nicky & Wayne Sorbelli having fun & exporing Fairchild Tropical Garden, Miami
Nicky’s hemoglobin levels are low from his chemotherapy so he’s getting a blood transfusion today. His platlets are good and his white blood cell count is fair, but hemoglobin is below 5, which is teetering on passing out, so a blood transfusion is nessessary.
The plan now is one bag of blood transfused through his heart port over the next the hours, then rest an hour, then another bag over following three hours, then observation until 4 am – then following an early morning CBC blood test we will either be getting a third bag of blood or going back to our Miami apartment to rest up.
Some Sorbelli Family time, Jamie, Nicky and I at Fairchild Botanical Gardens, Miami Florida. When having a good day with good blood counts,good white blood cell counts, days with energy to spare (while kicking cancer’s ass), we explore around beautiful Coconut Grove & South Miami area.
live Lessons on Zoom, Skype & FaceTime Guitar Ukulele Bass & CigarBoxGuitar
Nicky used a zillagram worth of energy on his health bar meter yesterday during NICKY SORBELLI VS. CANCER. 
