Category Archives: Nicky Sorbelli

I am 10 years old. Loving the life in Key West. Right now I’m in a huge fight with cancer. I’m staying strong and kicking its ass. I have to eat healthy, get exercise, and think positive and I can get it out of my body. Please help me get better by praying and thinking good thoughts! :) :)

One cancer ass kicking day at a time,,, but yesterday it was almost kicking our ass, it was a little, but I think we bounced off of a “bottom” Sorbelli.com

Nicky Wayne Sorbelli chillin' in Miami, missing Key West typing on
Nicky Wayne Sorbelli chillin’ in Miami, missing Key West typing on

 One cancer ass kicking day at a time,,, but yesterday it was almost kicking our ass, it was a little, but I think we bounced off of a “bottom” and pray that today is better. I have a feeling it will be better today.

Nicky is sleeping right now so I’m just praying and reading over the posts by friends and all the positive vibes and prayers out there on my web sites and email and texts. It’s so awesome and uplifting. It really helps us to have all the digital age support – there would be a big void if we didn’t keep up digitally and with our web site and messages and emails!!!!

When it comes right down to it – we’ve been keeping track – when we reach out for prayers and help – its stronger than chemo — its stronger than food or vitamins — some powerful stuff, the power of positive thought. The cancer & or chemo is tricking Nicky into not eating much at all, really if he doesn’t eat today we’ll be going into the hospital for sure 🙁

There is so much psychology going on here at the moment at Casa Sorbelli. We can’t make too big of a fuss over eating or it creates too much pressure, and defense/offense position open up. We’re not playing that game. Instead we are trying to take the TEAM approach today.  We will use every “mind over matter” advantage ala small portions on plate; cool or room temp NOT hot as it tends to make nausea worse; disguising non attractive food for colorful happy looking food; shakes shakes shakes and more shakes. U can blend up just about anything and make it taste like just about anything – I’m hoping.

It’s a non stop struggle almost a battle to get him to eat even 1 cheerio. This is the first time he has shut out food. – so it rocked our boat & his, yesterday  unfortunately he is very weakened by now not only the chemo but also the lack of any food. It had taken from 9am-7pm yesterday to drink half of a protein shake (which is not enough).

Today when he wakes up we are going to keep calm and try to teach him more about Mind Over Matter. I’m taking it as a Good sign that right before he passed out on the couch yesterday after a short walk, he raised his fist in the air and proclaimed “take that cancer, your not getting me” and he punched his closed clinched fist in the air. I was so proud of him.  I knew as he was passing out that today was going to be a better day, or least a better day of the mind and of taking big control back – TAKING CONTROL where you can, like trying to eat and exercise is essential for healing. 

Like my dear family friend, Key West chiropractor Michael Norman who’s offer of an X-ray saved Nicky’s life, says : 

“Step 1 one :Maximize the Mind!!!!!”

Forward thinking, forward moving, bless up/\

For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :
Wayne Sorbelli (Nicky Fund 2487)
2520 Harris Ave.Apt 1
Key West. FL 33040

OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/

To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0

WAYNE & NICKY SORBELLI HANGING IN MIAMI WHILE WHOOPIN’ CANCERS ASS ONE DAY AT A TIME! GRATEFUL TO ALL OUR KEY WEST & NEPA FAMILY & FRIENDS FOLLOWING SORBELLI.COM & ISLANDGUITAR.COM HELPING US STAY IN TOUCH & IN TUNE.

Wayne & Nicky Sorbelli thank family & friends for supporting Sorbelli.com & IslandGuitar.com
Wayne & Nicky Sorbelli thank family & friends for supporting Sorbelli.com & IslandGuitar.com

The entire extended Sorbelli family are VERY grateful to all our Key West & NEPA Pennsylvania family & friends who are following our lives, on Sorbelli.com & IslandGuitar.com helping us stay in touch & in tune. Our family music shop has stayed open with tons of help from our friends. Thank you David Warren, James King III, Shana Gaskill, Rusty Applebee, Beth Brown , Marilyn & Dean Borland & Briana Castillo. Sheila Keezer, Ted Shudak, Quint & Cathy Sorbelli. The Sechevich family. Penny Maun, Layla Laser, one million others.

HELP Nicky Sorbelli my 9yr old son whom we just discovered has T Lymphoblastic Lymphoma (cancer) & we badly need everyone to HELP & PRAY & SHARE.
So far he is responding well to treatment. Treatment plan for now is Thurs – Saturday in Miami children’s hospital every week until Jan 2016, then once a month for 2 years. So it’s going to be a long strange trip to say the least.
For those of you who are unable to attend a fundraiser, donations can be made directly to any First State Bank branch of the FL Keys in person by mentioning Wayne and/or Jamie Sorbelli and the account ending in 2487 or mail to :
Wayne Sorbelli (Nicky Fund 2487)

Harris Ave.Apt 1

Key West. FL 33040

Nicky & I are typing and loading pictures on Nicky’s own page on our Sorbelli family website at https://sorbelli.com/nicky/

OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: http://islandguitar.com/nicky-sorbelli-fundraiser/

To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0

Nicky Sorbelli holds on dearly to his “healing scarf” that people prayed with then sent to him as a gift 

 

Nicholas & Wayne Sorbelli plan another Cancer Killer Benefit Concert
Nicholas & Wayne Sorbelli plan another Cancer Killer Benefit Concert

Nicky holds on dearly to his heeling scarf that people prayed with then sent to him THANK YOU.

While wearing it he thinks of all the people’s faces he remembers from church and around town in kW & NEPA and he says he can actually feel its positive energy. It actually helps heal him. No doubt about it.

A few Sundays ago I’m sitting in Miami Children’s Hospital standing next to Nicky while he lay in bed after chemo and my hair is standing up on my arms and back of neck & everytime I walked by Nicky. It was like static electricity but not the same. Hard to describe. But then I checked my phone later and realized over a hundred messages and emails and texts were being sent to our family at that exact time. When I realized that it was the fact that churches were calling to say they were all praying that morning for Nicky, with his picture on the big screens in churches everywhere not just key west and NEPA, and then got more message from different people and churches all saying the same thing. They were all thinking and praying for us at the sane time. I swear I almost fainted when I realized it was everyone’s prayers that I was physically feeling when I stood next to Nicky. Omg let me say how wonderful a feeling to watch his color come back, and wake up and say- dad – I think I feel better now!

His treatments, prayers, caring, sharing of resources, LOVE and positivity are working!
NIcholas is “Kicking Cancer’s Butt, One Block at a Time”

For all updates & Nicky News https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/ 

TO MAKE DONATION:
Their Go Fund Me site:
http://www.gofundme.com/uldcw0

Thor, USA Infantryman Ted “Bear” & Super Dad will be there to lend Nicky a hand kicking his cancer’s butt @ Miami Children’s Hospital

 

Super Hero Cancer Killers Infantryman Ted Shudack, Thor & Papa Sorbelli at Miami Children's Hospital
Super Hero Cancer Killers Infantryman Ted Shudack, Thor & Papa Sorbelli at Miami Children’s Hospital

We are going to  Miami Children’s Hospital for a two month stretch of some cancer ass woopin’ butt kicking chemotherapy, tons of prayers, lots of love and a couple superheroes waiting to lend a hand!!!!!!

Thor, USA Infantryman Ted “Bear” AND Super Dad will be there to lend Nicky a hand kicking his cancer’s butt – BIG TIME!!

Happy Father’s Day to my dad Quint Sorbelli & my grandfather Paul “Bonzo” Sechevich

 

Wayne and Nicky Sorbelli enjoying Father's Day in Miami
Wayne and Nicky Sorbelli enjoying Father’s Day in Miami

No rules at Miami Children’s Hospital against some.tickling and some laughing during chemotherapy is there??

Happy Father’s Day to my dad Quint Sorbelli & my granddad Paul Sechevich “Bonzo” keep rocking on, moving forward, and blessing UP!

Ironically this is the BEST Father’s Day so far for me as a dad. A second chance at my son’s life beats the living crap out of a new coffee cup or sweatshirt, lawnmower, drill or even sports car or yarch! – any day!! I have NEVER been so grateful in my life. My family is so surrounded with love and prayers and positive vibes that I can feel it in my heart, soull, spine, tingling on the back of the neck AND the hair on my arms stands up. We are glowing with hope and gratitude.  Thanks for all the best dad day ever!!!

OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli: https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/

OFFICIAL UP TO DATE everything Nicky Sorbelli. https://sorbelli.com/category/nicky-sorbelli/

To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0

Nicky Sorbelli 10th BDay party in Key West before heading off to Miami Children’s Hospital for chemotherapy  

 

Nicky Sorbelli 10th Birthday Party with Family & Friends in Key West
Nicky Sorbelli 10th Birthday Party with Family & Friends in Key West

Nicky Sorbelli 10th BDay party in Key West with family and a few friends before heading off to Miami Children’s Hospital for a two month stretch of some cancer ass woopin’ butt kicking  chemotherapy, tons of prayers, lots of love and a couple superheroes waiting to lend a hand!!!!!!

Super Hero Cancer Killers Infantryman Ted Shudack, Thor & Papa Sorbelli at Miami Children's Hospital
Super Hero Cancer Killers Infantryman Ted Shudack, Thor & Papa Sorbelli at Miami Children’s Hospital

Happy (early) 10th Birthday little buddy!!

Nicky Sorbelli “Kicking Cancers Butt – One Block at a Time” T-Shirts

 

Nicky Sorbelli “Kicking Cancer’s Butt One Block at a Time” TShirts
Nicky Sorbelli “Kicking Cancer’s Butt One Block at a Time” TShirts

 

Call us by phone or leave us an email for shirt orders:

Island Guitar Key West (Home of the BONE ISLAND MUSIC CREW) 1109 Key Plaza Key West, Fl 33040 Phone: 305-414-8056

Island Guitar Dallas (Home of the  Wayne’s World Music Crew) 2611 Memorial Hwy Dallas, Pennsylvania 18612 570-674-1995    

 

OFFICIAL UP TO DATE everything Nicky Sorbelli. https://sorbelli.com/category/nicky-sorbelli/

OFFICIAL UP TO DATE LIST OF FUNDRAISRERS for Nicky Sorbelli:  https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/

To donate to Their Go Fund Me site: http://www.gofundme.com/uldcw0

 

Nicky Sorbelli gets port installed directly into his heart for his cancer chemo treatments and other IV needs.


Nicky gets a port installed directly into his heart which is accessed from a small plate buried under his skin on his chest. for his cancer chemo treatments and other IV needs that he will be having done over the next few years.

Treatment plan remains weekly chemo trips to Miami Children’s Hospital for the next 7 months. Then three years of maintenance, one weekend a month for the three years. Totaling around 3 years 8 months total.

Yes thank God that the cancer is retreating, running scared from chemo and nutrition and prayers by the pound.

Nicky less than 12 hours after getting the chemo heart port placement operation.  He’s very soar but still wants to go walking around the nurses station for exercise and curiosity lol

For all news about Nicky:  https://sorbelli.com/category/nicky-sorbelli/

For the latest about Nicky’s Benefit concerts and Fundraisers:  https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/

To Donate to Nicky Sorbelli Fund:  http://www.gofundme.com/uldcw0

NICKY SORBELLI Good news! Prayers, positivity, caring, & sharing from family & friends is KICKING CANCERS BUTT

Cancer Butt KIcker Nicholas "Nicky" Wayne Sorbelli & his Father.

Cancer Butt KIcker Nicholas “Nicky” Wayne Sorbelli & his Father.

The Sorbelli family just got GREAT news about Nicky!

Nicky’s cancer is retreating!!!

The tumor had shrunk from larger than a grapefruit size, to the size of a piece of rice,  in just one month!!

His treatments, prayers,  caring, sharing of resources, LOVE and positivity are working!

NIcholas is   “Kicking Cancer’s Butt, One Block at a Time”

For all updates & Nicky News  https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/ 

TO MAKE DONATION:

Their Go Fund Me site:

http://www.gofundme.com/uldcw0

How to donate to Nicky Sorbelli Cancer Butt Kicking Fundraisers


To HELP Nicky Sorbelli my 9yr old son whom we just discovered has T Lymphoblastic Lymphoma (cancer) & we badly need everyone to HELP & PRAY & SHARE.
So far, he is responding well to treatment. Treatment plan for now is Thurs – Saturday in Miami children’s hospital every week for next seven months. Then once a month for three years. So it’s going to be a long strange trip.
Their Go Fund Me site:
http://www.gofundme.com/uldcw0

For latest about Nicky’s Benefits and Fundraisers  https://sorbelli.com/category/nickys-cancer-benefits-fundraisers/