Nicky’s last PET scan showed live cancer activity in his chest where it was originally in the lymph nodes in front of and around his thymus.
He is getting a blood transfusion (hemoglobin) as I type this. He is going in for a biopsy to verify the exact diagnosis of what they are still calling T-Lymphoblastic Lymphoma and this would be considered a recurrence as they were pretty sure it was all gone.
The doctors here at Miami Childrens Hospital have sent all of Nicky’s info to the leading children’s hospitals in the country and four of the top lymphoma doctors in the nation for a review in front of the world’s round table of thinkers in this stuff.
So far everyone agrees to hit it back with a different chemo that is kept in reserve just in case cancer builds resist endive to the first chemo- which his obviously did. So far all say to prepare for a bone marrow transplant. So we are looking for a bone marrow match donor!
We have been praying harder that ever and are asking everyone to buckle down and pray & mediate, please go now before whatever power that you call God, and beg for some positivity & help in Nicky’s direction.
We need to start looking for a bone marrow match for Nicky’s transplant. You can get a free home test at www.BeTheMatch.org
Thanks and as always I will keep everyone posted as we go, as I can.
Follow Nicky’s blog at www.NickySorbelli.com
Reggae on the Rock this SUNDAY – BENEFIT CONCERT FOR NICKY SORBELLI – This Sunday December 18th, 2015 Stock Island Village Marina, Shrimp Road, Stock Island.
Monetary donation can be made dorectky to First State Bank payable to Sorbelli. Memo Nicky Sorbelli donation fund 2487
Official list of benefit concerts and fundraisers http://islandguitar.com/nicky-sorbelli-fundraiser/
Nicky’s gofundme account https://www.gofundme.com/uldcw0
Need info on getting home test to see about possible match.
My name is Brandy Spencer. I read this story yesterday and my heart sank. I could never imagine being in your shoes and after reading I went online and registered. I donated a kidney to my father in law when he needed one and if there was anything I could do I for your baby I would. I have vitiligo (which didn’t matter when I donated my kidney) but I do not think they will allow me after I had to check yes that I have it. I’m 100% healthy, blood type O, and if it wasn’t for my skin I’d help out in a second. If it comes back they would allow me to, I’d do it in w heartbeat! I’m hopeful they allow me but fearful they won’t. I’m sorry for you and your family and I truly am hopeful your little one will in turn kick cancers ass! If you can ask about the vitiligo issue and they give a thumbs up, I promise I’d do whatever I could!
Well wishes to you and your family!
Sincerely
Brandy
May I send Nicky some Reiki? Is this therapy a part of his treatment?
My prayers to you and Jamie and the family. Wish I could help. Love to you and the family.
Hello,
I don’t see a time for this event, is there? Or, is it an all day thing?
May the lord bless you and your family and make your child whole again.may the blessed mother be with and look over your child.