Nicky Sorbelli, my 10yr old son, the bravest boy I’ve ever met – just had his finger picked to get blood work that showed he qualifies for his chemo today (that means his body can handle the chemo without it killing him) Now he just got his MediPort (heart port) activated (the heart port is a small rubber sphere similar to a super ball with a few IV lines that come off it. The port was placed in Nicky’s chest via a minor operation just under the skin but atop the breast muscle and the lines were fished though the main arteries and directly into his heart. This is to protect his veins from the ongoing chemo treatment preventing burning and damage during infusions. The port goes directly to the Heart and pumped to entire body quicker and safer. To “activate” the port we put numbing cream on the bumble on his chest. Then the qualified nurse sticks a one inch 20 gauge needle into it then hooks any and all meds directly to the access needle not having to stick Nicky for any thing else during this stay at the hospital. Which is awesome because constant needles and children do NOT go well together.
After the first chemo infusion Nicky will head down to minor procedures for a lunar puncture (spinal tap chemo)
Thanks for all the prayers and for the continued support with the fundraisers and benefit concerts – we are blessed by and because of you all.
Follow Nicky’s own blog page: https://sorbelli.com/nicky/
List of Nicky Sorbeli Cancer KILLER benefit concerts: http://islandguitar.com/nicky-sorbelli-fundraiser/
Family website: www.Sorbelli.com
To donate to Nicky’s Cancer Killer Fund: https://www.gofundme.com/uldcw0
Once the heart port is activated and the IV lines hooked up, they hang the bags of chemo and medicines and let the infussions begin.
It’s sit back and wait now. In between the vicious spells of nasea we like to play video games, paint with our artist friend Diana De Los Rios, or even play a little ukulele or guitar together.
I should add that Nicky still does his school work every day and online skype lessons with his teacher almost daily – yes even while in the hospital Nicky WANTS to keep learning. His grades are great and he is moving through the ciriculum at a fast steady determined pace. He is truly my hero on so many levels. I am humbled by my 10 yr old son. Thank you God & Jamie for giving me such a wonderful soul – a wonderful person – my hero Nicky Sorbelli.
