Category Archives: Leela

Sorbelli’s need a Christmas Holiday Miracle! Cancer decided to fight harder so we need to fight back harder & asking for prayers & positivity to HELP us defeat Nicky’s Lymphoma! Looking for a bone marrow match donor!

  
Nicky’s last PET scan showed live cancer activity in his chest where it was originally in the lymph nodes in front of and around his thymus. 

He is getting a blood transfusion (hemoglobin) as I type this.  He is going in for a biopsy to verify the exact diagnosis of what they are still calling T-Lymphoblastic Lymphoma and this would be considered a recurrence as they were pretty sure it was all gone. 

The doctors here at Miami Childrens Hospital have sent all of Nicky’s info to the leading children’s hospitals in the country and four of the top lymphoma doctors in the nation for a review in front of the world’s round table of thinkers in this stuff. 

So far everyone agrees to hit it back with a different chemo that is kept in reserve just in case cancer builds resist endive to the first chemo- which his obviously did.  So far all say to prepare for a bone marrow transplant. So we are looking for a bone marrow match donor!

We have been praying harder that ever and are  asking everyone to buckle down and pray & mediate, please go now before whatever power that you call God, and beg for some positivity & help in Nicky’s direction. 

We need to start looking for a bone marrow match for Nicky’s transplant.  You can get a free home test at www.BeTheMatch.org

Thanks and as always I will keep everyone posted as we go, as I can. 

Follow Nicky’s blog at www.NickySorbelli.com

Reggae on the Rock this SUNDAY – BENEFIT CONCERT FOR NICKY SORBELLI – This Sunday December 18th, 2015 Stock Island Village Marina, Shrimp Road, Stock Island.

Monetary donation can be made dorectky to First State Bank payable to Sorbelli. Memo Nicky Sorbelli donation fund 2487

Official list of benefit concerts and fundraisers http://islandguitar.com/nicky-sorbelli-fundraiser/

Nicky’s gofundme account https://www.gofundme.com/uldcw0 

Nicky gets a PET scan today to see if any cancer is left and to check on his Thymus. Please send prayers!

  
PRAYERS NEEDED RIGHT NOW!! Nicky is going in for PET scan 8am-10am to show if there is any cancer left. 

 Please friends and family pray up a storm this morning and until j post the news either way!! 

Forward thinking, Forward moving!!

Monetary donation can be made directky to First State Bank Of The Florida Keys : check payable to SORBELLI note in memo (donation account 2487)

OR

Nicky’s gofundme account https://www.gofundme.com/uldcw0

Nicky & I are typing and loading pictures of benefit concerts and fundraisers on http://islandguitar.com/nicky-sorbelli-fundraiser/

Nicky’s own page on our Sorbelli family website at www.NickySorbelli.com

Heading back to Miami for the last 4-6 weeks of intense chemo then 1.5 yrs of monthly chemo infusions & 3 more yrs of chemo by pill – PLEASE keep sending prayers & HELP Nicky’s direction. Forward Thinking, Forward Moving!!

  
We are heading back to Miami today from our miracle Thanksgiving break to start the last four-six weeks of intense treatment (the hardest and scariest part) then down to once a month chemo infusions for a year and a half and chemo by pill for the next three years after this phase. It not easy but he is winning the war on his cancer and kicking cancers ASS one cell at a time!!! 

We had a great Thanksgiving at home with family and friends and got some much needed rest and recouperation as we are getting ready for the hardest and most intense part of Nicky’s chemotherapy. 

Please keep your fingers crossed and keep sending the prayers and well wishes PLEASE! We are living on prays by the pound right now. 

Folow Nicky @ www.NickySorbelli.com
Updated list of benefits and fundraisers http://islandguitar.com/nicky-sorbelli-fundraiser/ 

Nicky’s gofundme account https://www.gofundme.com/uldcw0 

  
Bumper stickers for sale at Wayne’s World Music Dallas Pa and Island Guitar aka Bone a island Music Key West or just msg, text call or email us Many thanx. CONTACT http://islandguitar.com/contact-location/
  

Sorbelli family got a Thanksgiving holiday miracle when after Nicky’s chemotherapy we got to leave the Hospital & come back home to Key West because his blood counts were holding up so well & fighting so strong


“Miracle Blues From Outer Space” TODAY’S soundtrack for Nicky Sorbelli’s EPIC ASS KICKING of his blood cancer! The Sorbelli family got a holiday miracle yesterday when after Nicky’s chemotherapy we got to leave the Miami Children’s Hospital & come back home because his blood counts were holding up so well & fighting so strong!!! He isn’t scheduled for any more chemo until Dec 14th so a little break is just amazing for him and us right now!
It’s a feeling I can’t explain – I’m so happy! There aren’t any words for the feelings that accompany getting out of the hospital and chemotherapy UNEXPECTEDLY the day before Thanksgivibg! It’s a true holiday miracle and we are very very thankful – it’s perfect! 
As we drive down US1 heading back home – I am getting calls and texts and emails from my music shop in Key West that there was a very special person hanging out and celebrating the holiday on Duval street  Key West – a one and only ROBERT PLANT. Yep that is special and he is probably cool to party with and hang with – but all I can say – and I say with much humility and respect – “MOVE OVER ROBERT PLANT NICKY SORBELLI is coming back to town!!” Robert you & Santa Clause may have to wait in line for the attention this year if Nicky is back in town because he’s the coolest of the cool! 

And Robert his hair was as EPIC as yours back in the day. He’s Lion at heart – a Golden Child God

   

 www.Sorbelli.com

Sorbelli Family Zombie Cancer Killer Super Heroes going to teach Nicky’s blood cancer a lesson on how to GET OUT & STAY AWAY

 

Sobelli Cancer Killer Zombie Heros
 
  We were training on being cancer killing Heros and keeping positive so that we may unleash on the beast cancer a serious butt kicking. 

We have to be tough REAL tough –  ZOMBIE TUFF !!! So we practicing getting ZOMBIE on today’s catch so we are prepared to take on Nicky’s blood cancer. 

We are getting ready to go in for phase 3 of 4 intense chemotherapy on Tuesday morning. We were at home in Key West for a few days of “rest/fishing 😃👍” – getting ready to head back to Miami in a few hours. It would have been great to see our friends this weekend but so sorry we couldn’t make it to Jazz Cafe Benefit for Nicky (we were under doctor’s orders to avoid anyone but immediate family & avoid all crowds (because Nicky’s immune system is very compromised at the moment as the chemotherapy does its job on the cancer) which makes fishing on a boat in the gulf of Mexico away from everything and everyone a relatively SAFE but very fun activity (except for  the swimming with the SHARKS part lol just kidding)
I’m asking in advance to please keep sending prayers!! Thank you 
Updates at www.Sorbelli.com

List of Nicky benefit concerts http://islandguitar.com/nicky-sorbelli-fundraiser/

Getting ready to start phase 3 of 4 intense chemotherapy on Tuesday morning. We r at home in Key West for few days of “rest” & light fishing w/Commander Hawk Fishing Charters. 

  
We are getting ready to go in for phase 3 of 4 intense chemotherapy on Tuesday morning. We were at home in Key West for a few days of “rest” “fishing 😃👍” – getting ready to head back to Miami in a few hours. It would have been great to see our friends this weekend but so sorry we couldn’t make it to Jazz Cafe Benefit for Nicky (we were under doctor’s orders to avoid anyone but immediate family & avoid all crowds (because Nicky’s immune system is very compromised at the moment as the chemotherapy does its job on the cancer) which makes fishing on a boat in the the gulf if Mexico away from everything and everyone is a SAFE and still very fun activity (except for swimming with the SHARKS lol)

I’m asking in advance to please keep sending prayers!! Thank you 

Benefit Concert for Nicky Sorbelli’s Blood Cancer Battle NEPA Nov 8th, 2015 River St Jazz Cafe, 667 N. River St. Plains, Pa

  
The schedule for the bands is set:

3:00 : Strawberry Jam

4:00 : George Wesley

5:00 : MIZ

6:00 : Behind the Grey

7:00 : StingRay’s Blues Band

8:00 : BKOEC

9:00 : Halfway to Hell

10:00: Delirium

Please drop off any donations, silent auction items, or gifts for raffles in person or mail to Waynes World Music  2611 Memorial Hwy Dallas, Pa 18612

Follow Nicky and the rest of the family on our personal site wwww.Sorbelli.com 
Monetary donation can be made dorectky to First State Bank Of The Florida Keys account SORBELLI 2487 
OR 

Nicky’s gofundme account https://www.gofundme.com/uldcw0 
Nicky & I are typing and loading pictures on Nicky’s own page on our Sorbelli family website at http://sorbelli.com/nicky/

NEPA musicians Benefit Concert To Help 10yr old Nicky Sorbelli Kick His Blood Cancer’s Ass Nov 8,2015 @River St Jazz Cafe, Plains Pa 

  
Nov 8th NEPA Benefit Concert To HELP my son 10yr old Nicky Sorbelli with his epic battle to Kick His Blood Cancers Ass still needs donation baskets and raffle items.  PLS SHARE 

OMG these bands are awesome. This is gong to be a GREAT MUSICAL CALL TO ARMS for NEPA and for the GREATEST  CAUSE IN THE WORLD – so my little boy can continue to battle his blood cancer and my wife and I can afford to stay by his side over the course of the next several months while he continues his chemotherapy. 

Aside from the donations and raffle items that all my friends are throwing in, I will be giving up many of my personal items to put into the raffle – like a bunch of music collectibles & autographs & records, as well as a few of my guitars.  An all black USA Strat, a vintage cherry Dean Gran Sport, a few work horse guitars like my Reverend Charger HBFM and Nylon string guitar, and more. 

Follow Nicky and the rest of the family on our personal site  wwww.Sorbelli.com 

Monetary donation can be made dorectky to First State Bank Of The Florida Keys account SORBELLI 2487 

OR 

Nicky’s gofundme account  https://www.gofundme.com/uldcw0 

Nicky & I are typing and loading pictures on Nicky’s own page on our Sorbelli family website at http://sorbelli.com/nicky/

While on break from chemo Nicky driving the boat back home to Key West from fishing trip w/Commander Hawk Fishing Charters

While on break from chemotherapy at Miami Childrens Hospital we headed back home in Key West & got on the water as soon as we could. Friend Tim of Commander Hawk Fishing Charters made sure we had the best adventure ever!! Here is a video of after we caught a bunch of snappers and Nicky caught a 7.5 ft shark – Nicky learning to navigate our way home from the fishing trip – driving the fishing boat!!

Fishing in Key West Nicky catches 7.5ft 150lb SHARK  while taking 5 day break from chemotherapy @ Miami Children’s Hospital

With 5 days off from chemotherapy and the Miami Children’s Hospital we headed back to our home in Key West and went fishing with Commander Hawk and the family. 

Nicky was catching some BIG snapper but ramped up the adrenaline on board when he hooked a 7.5 SHARK!! A HUGE nurse shark!! It took him almost 5 minutes to bring in this “sea monster” OMG SHARK!!